12th Annual Friedreich’s Ataxia Symposium

Monday, October 14, 2019, 8:00 AM - 5:00 PM, Crowne Plaza Valley Forge

Friedreich’s ataxia (FA) is a rare condition that leaves patients and families searching for more information and resources. While there is currently no cure for FA, efforts continue toward research that will one day halt or even reverse disease progression. The Friedreich’s Ataxia Center of Excellence at Children’s Hospital of Philadelphia is pleased to present this one-day symposium providing patients and families with up-to-date clinical information on therapeutic approaches and current research being conducted in the field of Friedreich’s ataxia.

Meeting Location

The symposium will be held Monday, Oct. 14, 2019, at the Crowne Plaza Valley Forge in King of Prussia, Pa. The hotel is directly across from the King of Prussia Mall, the largest shopping mall in the United States, and is less than two miles from the Valley Forge National Historic Park, the site of Washington’s troops’ winter encampment during the Revolutionary War.  

Meet-and-Greet

Join us for an informal meet-and-greet on Sunday, Oct. 13th from 6  to 7:30 p.m. Light refreshments will be provided. Your RSVP is required in advance; please check the box on the registration form. 

Poster Presentation

A special poster presentation will showcase current research, insights and innovative strategies in Friedreich’s ataxia by young investigators, researchers and postdoctoral students. This will provide the opportunity for the research community to interact with patients and families while simultaneously allowing families to further engage the scientific community. An interactive poster session with the presenters will be featured on Sunday evening during the meet-and-greet reception. Posters can also be viewed during the lunch break on Monday.

Everyday Hero

Who is your hero? What did he or she do to win your admiration? Maybe it was your hero’s courage, outstanding achievements or noble qualities that touched you. Share your inspiration — tell us about your hero. Submit a brief description (50 words or less) about your hero to: [email protected].

Join us in celebrating everyday heroes whose selfless acts, courage and stories of bravery are sure to inspire!

The registration fee is $95 per person. This fee includes conference registration materials, breakfast, lunch, breaks and welcome reception.

 

 

The Children's Hospital of Philadelphia is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education to physicians.

 

Travel Scholarships/Grants

FA Project

A limited number of travel scholarships will be offered to first-time attendees only who wish to attend the symposium and need financial assistance. FA Project For more information on how to apply for a travel scholarship from the FA Project, please contact Maria at [email protected]. The FA Project is a nonprofit organization created to raise awareness and funds to benefit those affected by Friedreich’s ataxia. The deadline to submit is Monday, Sept. 16, 2019.

Race for Matt and Grace, Inc. (RFMG)

 RFMG is an organization providing travel grants to the CHOP Friedreich’s Ataxia Symposium for New England residents. For more information on how to apply, email michael.t.crawley. [email protected] no later than 5 p.m. EST on Monday, Sept. 30, 2019. Notification of grant award(s) will take place on or prior to Thursday, Oct. 10, 2019. Applicant shall be a New England resident who has been diagnosed with FA.

Cancellation and Refund Policy

Children’s Hospital of Philadelphia reserves the right to cancel or postpone any course due to any unforeseen circumstances. In the event of cancellation or postponement, the hospital will refund registration fees, less a $40 service fee, but is not responsible for any related costs, charges or expenses to participants, including cancellation charges assessed by airlines or travel agencies. In order to process refunds, cancellations must be received in writing by Tuesday, Oct. 1, 2019. No refunds will be issued thereafter.

AMA PRA Category 1 Credits™ (1.00 hours), Non-Physician AMA PRA Category 1 Credits™ Attendance (includes PA, RT, RDMS) (1.00 hours)

A block of rooms with reduced rates has been reserved at the Crowne Plaza Valley Forge. The group rate is $132 for single and double occupancy plus 8 percent room tax. Participants are required to make their own hotel reservations by calling the Crowne Plaza directly at 610-265-7500. The special room rate will be available until Sept. 9, 2019. After that date, reservations will be accepted on a space and rate availability basis. Please mention the name of this conference when making your reservation.