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Deciphering Beckwith-Wiedemann Spectrum Conference

  • Overview
  • Register
  • Faculty
  • Schedule
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Add to Calendar Deciphering Beckwith-Wiedemann Spectrum Conference 7/21/2023 6:00:00 PM 7/23/2023 3:00:00 PM America/New_York For More Details: https://chop.cloud-cme.com/course/courseoverview?P=0&EID=3658 CHOP Hub for Clinical Collaboration false MM/DD/YYYY


Date & Location
Friday, July 21, 2023, 6:00 PM - Sunday, July 23, 2023, 3:00 PM, CHOP Hub for Clinical Collaboration, Philadelphia, PA

Target Audience
Specialties - Clinical Genetics

Overview
Deciphering Beckwith-Wiedemann Spectrum will provide updates on the current diagnostic and clinical management information and the latest research findings on the condition. Conference attendees will be educated on the vast spectrum of presenting clinical features, current clinical management practices, and common medical procedures. Researchers from Children's Hospital of Philadelphia will be joined by collaborators from around the world to present ongoing BWSp research topics as well. Understanding this information is crucial in providing optimal care to patients with BWSp. This conference is designed for clinicians, families with children who have BWSp, and adults with BWSp. The audience will be encouraged to further educate other clinicians and caregivers at their home institution.


Objectives
  1. Describe the (epi)genetics and clinical features of BWSp.
  2. More accurately diagnose patients with BWSp.
  3. Improve clinical care of individuals with BWSp.
  4. Explain educational materials with providers at their home institution.
  5. Share the latest updates on BWSp research.

Registration

GENERAL INFORMATION AND COURSE REGISTRATION FEES

In-Person Registration Fees Physician .............................................$75
Other Healthcare Providers ............$50
Family ...................................................$10/adult

Attending the conference in person includes continental breakfast, refreshments, lunch, and course materials.

Virtual Registration Fees
Healthcare Providers .......................$40
Family ..................................................$20/adult

Attending the conference virtually includes livestream access to the conference and access to view online course materials.


Accreditation

The Children's Hospital of Philadelphia is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education to physicians.

AMA CREDIT DESIGNATION STATEMENT
Children’s Hospital of Philadelphia designates this live activity for a maximum of 7.25 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

NURSING CONTINUING PROFESSIONAL DEVELOPMENT APPROVED PROVIDER STATEMENT
Nurses will receive a CME certificate of completion. Nurses may use CME category 1 credits for re-licensure in many states, as well as most re-certifications. Please check your state board and certifying body for re-licensure and re-certification requirements.

CONTINUING GENETIC COUNSELOR CREDITS
Genetic counselors may apply directly for Category 2 CEUs after they have attended the CHOP BWSp Conference. This event meets the criteria to be applicable for Category 2 CEUs. For more information on how to apply: https://www.nsgc.org/portals/0/docs/education/Who,%20When,%20How%20Much%20Cat%202.pdf


Additional Information

Abstract Submission
For health care providers, scientists, and trainees: There will be a poster session and speed talks as part of the conference this year. If you have an interesting BWS patient, group of patients, or scientific finding you would like to present, please email your abstract to [email protected] by May 1. Registration and travel support are available for some accepted abstracts. Please contact the BWS research team at [email protected] with questions.

Beckwith-Wiedemann Syndrome Clinic | Children's Hospital of Philadelphia
The Beckwith-Wiedemann Syndrome Clinic at Children’s Hospital of Philadelphia provides support and medical guidance for children.
https://www.chop.edu/centers-programs/beckwith-wiedemann-syndrome-clinic 

Clinic Questions
It families are interested in scheduling to see any of our specialists in the days before or after the conference, please contact the clinic at [email protected] 


Credits
AMA PRA Category 1 Credits™ (6.50 hours), Non-Physician Attendance (includes PA, RT, RDMS, BS) (6.50 hours)

Hotel Accommodations
A block of rooms has been reserved at reduced rates at The Sheraton University City, located just a few blocks from Children’s Hospital. The group overnight rate is $169 single and double occupancy plus a 16.37 percent room tax. Participants are required to make their own hotel reservations by calling The Sheraton directly at 215-387-8700. Please mention the name of the conference when making your reservation. The special room rate will be available until Thursday, June 22, 2023. After that date, reservations will be accepted on a space and rate availability basis.

Book your group rate for Deciphering Beckwith-Wiedemann Spectrum Conference 2023



Mitigation of Relevant Financial Relationships


Children's Hospital of Philadelphia adheres to the ACCME’s Standards for Integrity and Independence in Accredited Continuing Education. Any individuals in a position to control the content of a CE activity, including faculty, planners, reviewers or others are required to disclose all relevant financial relationships with ineligible entities (commercial interests). All relevant conflicts of interest have been mitigated prior to the commencement of the activity.

Faculty Member Information
Role in activity
Name of Ineligible Company(s) / Nature of Relationship(s)
Jennifer Kalish, MD, PhD
Children's Hospital of Philadelphia
Course Director, Faculty
Nothing to disclose
Marisa Bartolomei, PhD
Faculty
Monica Bertoletti
AIBWS ODV
Italy
Faculty
Jack Brzezinski, MD
The Hospital for Sick Children
Faculty
Diana Carli, MD
Faculty
Christopher Cielo, DO
DO
Children's Hospital of Philadelphia
Faculty
Jennifer Cohen, MD
Duke University
Faculty
Sherri Cohen, MD
Children's Hospital of Philadelphia
Faculty
Nothing to disclose
Richard Davidson, MD
Children's Hospital of Philadelphia
Faculty
Diva De Leon, MD
Children's Hospital of Philadelphia
Faculty
Arupa Ganguly, PhD
University of Pennsylvania
Faculty
Andrea Gazzin, MD
University of Turin
Faculty
Evan Hathaway
CHOP
Faculty
Nothing to disclose
Emma Kennedy
University of Pennsylvania
Faculty
Steven D Klein, MD/PhD
Resident/Fellow
CHOP
Faculty
Suzanne MacFarland, MD
Faculty
Alessandro Mussa
Faculty
Hyun-Duck Nah-Cederquist, DMD
Children's Hospital of Philadelphia
Faculty
Snehal Nirgude, PhD
Children's Hospital of Philadelphia
Faculty
EMILY SHABASON, MD
Children's Hospital of Philadelphia
Faculty
Cynthia Solot, MA
Senior Speech-Language Pathologist
CHOP
Faculty
Lisa States, MD
Children's Hospital of Philadelphia
Faculty
Nothing to disclose
Jesse Taylor, MD
Children's Hospital of Philadelphia
Faculty
Kristin Zelley, MS, LCGC
Children's Hospital of Philadelphia
Faculty
Mallory Byrne, CRNP
Chop
Faculty, Nurse Planner
Nothing to disclose
William Drust, MA
Clinical Research Coordinator I
Children's Hospital of Philadelphia
Faculty, Other Planning Committee Member
Nothing to disclose
Salima Nesbitt, BSN
CHOP
Nurse Planner
Nothing to disclose

Friday, July 21, 2023
Registration
5:00PM - 6:00PM
Opening Reception and Welcome Remarks
6:00PM - 6:30PM
Jennifer Kalish, MD, PhD
Dinner
6:30PM - 8:00PM
Parent Social Night 1
8:00PM - 9:00PM
Saturday, July 22, 2023
Registration and Breakfast
8:00AM - 9:00AM
Introduction to BWSp and Clinical Features
9:00AM - 9:15AM
Jennifer Kalish, MD, PhD
(Epi)Genetics of BWSp
9:15AM - 9:30AM
Evan Hathaway
Molecular Aspects of BWSp
9:30AM - 9:45AM
Emma Kennedy
Arupa Ganguly, PhD
The Diagnostic Odyssey of BWSp
9:45AM - 10:00AM
Mallory Byrne, CRNP
Q&A
10:00AM - 10:15AM
Break
10:15AM - 10:45AM
Understanding Macroglossia in BWSp
10:45AM - 11:00AM
Jesse Taylor, MD
BWSp and Sleep
11:00AM - 11:15AM
Christopher Cielo, DO
Orthodontics and Jaw Development in BWSp
11:15AM - 11:30AM
Hyun-Duck Nah-Cederquist, DMD
Speech Development in BWSp
11:30AM - 11:45AM
Cynthia Solot, MA
Nutrition and Feeding in BWSp
11:45AM - 12:00PM
Sherri Cohen, MD
Q&A
12:00PM - 12:15PM
Lunch
12:15PM - 1:00PM
Management of Hypoglycemia and Hyperinsulinism in BWSP
1:00PM - 1:15PM
Diva De Leon, MD
BWSp and Lateralized Overgrowth
1:15PM - 1:30PM
Richard Davidson, MD
Tumor Screening in BWSp
1:30PM - 1:45PM
Suzanne MacFarland, MD
Kristin Zelley, MS, LCGC
Radiology Findings in BWSp
1:45PM - 2:00PM
Lisa States, MD
BWSp and Development
2:00PM - 2:15PM
EMILY SHABASON, MD
Q&A
2:15PM - 2:30PM
Break
2:30PM - 2:45PM
Blood Tests for Wilms Tumor Surveillance in Children with BWSp
2:45PM - 3:00PM
Jack Brzezinski, MD
Adrenal Masses in BWSp
3:00PM - 3:15PM
Diana Carli, MD
AIBWS Assessment of Adults with Beckwith-Wiedemann Syndrome
3:15PM - 3:30PM
Andrea Gazzin, MD
Adult Experiences with BWS: a Discovery Cohort
3:30PM - 3:45PM
Jennifer Kalish, MD, PhD
William Drust, MA
The Phenotypic Spectrum of Twins in BWSp
3:45PM - 4:00PM
Jennifer Cohen, MD
Q&A
4:00PM - 4:15PM
Impact of Assisted Reproductive Technologies on Genomic Imprinting in a Mouse Model
4:15PM - 4:30PM
Marisa Bartolomei, PhD
CDKN1C Mutations Revisited in BWS
4:30PM - 4:45PM
Steven D Klein, MD/PhD
Utilizing novel technologies in BWS Research
4:45PM - 5:00PM
Snehal Nirgude, PhD
Lateralized Growth in Beckwith-Wiedemann Syndrome
5:00PM - 5:15PM
Alessandro Mussa
Next Steps in BWS Research
5:15PM - 5:30PM
Jennifer Kalish, MD, PhD
Q&A
5:30PM - 5:45PM
Adjourn for the Day
5:45PM - 5:50PM
Dinner
5:50PM - 7:30PM
Parent Social Night 2
8:30PM - 10:00PM
Sunday, July 23, 2023
Breakfast
8:00AM - 9:00AM
BWSp Through the Years: Parent Perspectives
9:00AM - 9:40AM
Q&A
9:40AM - 10:00AM
BWSp Through the Years: Family Persepectives
10:00AM - 10:40AM
Q&A
10:40AM - 11:00AM
Break
11:00AM - 11:30AM
BWSp Through the Years: Adult and Adolescent Perspectives
11:30AM - 12:10PM
Q&A
12:10PM - 12:30PM
Resources for Families
12:30PM - 12:45PM
Updates on International Collaboration
12:45PM - 1:00PM
Monica Bertoletti
Next Steps in BWS Research
1:00PM - 1:15PM
Jennifer Kalish, MD, PhD
Adjourn - Boxed Lunch
1:15PM - 1:30PM

Continuing Medical Education (CME) Department
3401 Civic Center Blvd.
Philadelphia, PA 19104

Contact Us: 215-590-5263
[email protected]


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